Avery Lynn Canahuati, pictured, was born with spinal muscular atrophy and is not expected to live beyond her second birthday. Her parents, Mike and Laura of Bellaire, Texas, have started a blog with a bucket list for the five-month-old.
Credits: FACEBOOK PHOTO
Avery Lynn Canahuati was born with spinal muscular atrophy (SMA). She has lost her ability to move her legs, and will eventually be unable to move her arms or head.
Earlier this month her parents, Mike and Laura of Bellaire, Texas, started a blog, told from their daughter's point of view.
Some of the items on the infant's bucket list that she has already completed include giving her mom and dad a kiss, being a cheerleader, going to a water park, having a birthday party, blowing bubbles and having a tea party.
Other things she wants to do include skydiving, making cupcakes and going to a zoo.
And some of the things on the bucket list it's unlikely she'll ever get to do, including being asked to go to her high school prom, running a five-kilometre marathon and graduating from high school.
"The last thing I want to do: Overcome my illness. But if not, then I'd like to take one last breath, then take one more before I go to live with my Uncle Bryant, Nana Carolyn, Papa George, and all my great grandparents," the blog says.
SMA is the name given to a group of genetic muscle-wasting disorders, Muscular Dystrophy Canada says. In severe cases, the muscles responsible for breathing and swallowing may be affected.
The group Families of SMA Canada say the disorder can affect one in 6,000. Type one, which is what Avery has, is the most severe.
The Canahuatis said they started the blog, Facebook page and Twitter account to inform people about SMA and to raise money for the U.S. group Fight SMA.
Another item on Avery's bucket list is to raise $1 million for the organization.